Sources of Information

Below you can find directions to world-class information on a variety of neurodegenerative conditions.

PSPA (Progressive Supranuclear Palsy Association)

https://www.pspassociation.org.uk/information-and-support/what-is-psp/

The Michael J. Fox Foundation For Parkinson's Research

https://www.michaeljfox.org/

CJDSN (Creutzfeldt-Jakob Disease Support Network)

https://cjdsupport.co.uk/

Parkinson's UK

Request free information booklets with useful information on Parkinson's disease, it's symptoms and medication side-effects.

https://shop.parkinsons.org.uk/collections/symptoms-and-side-effects

Huntington's Disease Association

The Huntington's Disease Association website provides a wide range of support, including information on the disease, local support available, and blogs.

https://www.hda.org.uk/information-and-support/

View guides and leaflets on Huntington's disease, providing a variety of useful information, guides and tips.

https://www.hda.org.uk/information-and-support/information-resources/guides-and-leaflets/

Find Huntington's disease support in your local area.

https://www.hda.org.uk/support-near-you/

The Lewy Body Society

The Huntington's Disease Association website provides a wide range of support, including information on the disease, local support available, and blogs.

https://www.lewybody.org/information-and-support/

Alex TLC (The Leukodystrophy Charity)
Useful links

https://alextlc.org/condition-management/useful-links/

Spinal Muscular Atrophy UK (SMA UK)
Support and information resources

https://smauk.org.uk/support-information/

SMA News Today (Spinal Muscular Atrophy)
Homepage

https://smanewstoday.com/

Davis Phinney Foundation (Foundation for Parkinson's). US-based.
Receive the 'Every Victory Counts' manual for Parkinson's care

https://davisphinneyfoundation.org/every-victory-counts-manual/

Blog library

https://davisphinneyfoundation.org/blog/

Webinars

https://davisphinneyfoundation.org/webinars-and-meetups/

Podcasts

https://davisphinneyfoundation.org/podcasts/

Find and contact an Ambassador

https://davisphinneyfoundation.org/find-an-ambassador/

Alzheimer's Association. US-based.
About Alzheimer's & dementia

https://www.alz.org/alzheimers-dementia

Help & support

https://www.alz.org/help-support

Research & progress

https://www.alz.org/alzheimers-dementia/research-and-progress

Our vision

Neural Network aims to make it easy for anyone to access high-quality information on neurodegenerative conditions.

To achieve this it provides a framework for accessing an ever-growing library of resources, information and support, all from one central online location.

The resources detailed within the Neural Network have been curated for their credibility, clarity and utility.

Disclaimer

Neural Network does not provide medical advice. The resources it facilitates access to are for reference, research and educational purposes only, and they are not intended as a substitute for professional medical advice, diagnosis or treatment. Always seek advice from a qualified healthcare professional about any medical concern, and do not disregard professional medical advice because of anything you may access on the Neural Network.

Unless otherwise explicitly stated, Neural Network takes no credit or responsibility for the research or information shown; please refer to the original authors for attribution.

Get in Touch

A critical aim of the Neural Network is to provide an easily-accessible source of neurodegeneration-relevant information that members of the public may not be aware of. I'm passionate about keeping the information here useful and relevant and so if you have feedback, discover a linked webpage has been removed before I do, or are running clinical trials and would like to collaborate then please feel free to either email at: contact@neuralnetwork.org or complete the adjacent form.