Sources of Information
Below you can find directions to world-leading information on a variety of neurodegenerative conditions.
Brain & Spine Foundation
NHS
https://www.nhs.uk/conditions/creutzfeldt-jakob-disease-cjd/
https://www.nhs.uk/conditions/dementia/
https://www.nhs.uk/conditions/dementia-with-lewy-bodies/
https://www.nhs.uk/conditions/huntingtons-disease/
https://www.nhs.uk/conditions/motor-neurone-disease/
https://www.nhs.uk/conditions/multiple-sclerosis/
https://www.nhs.uk/conditions/multiple-system-atrophy/
https://www.nhs.uk/conditions/parkinsons-disease/
https://www.nhs.uk/conditions/progressive-supranuclear-palsy-psp/
The Brain Charity
Alzheimer's Research UK
ALS Association
Shift.ms
PSPA (Progressive Supranuclear Palsy Association)
https://www.pspassociation.org.uk/information-and-support/what-is-psp/
Brain Research UK
https://www.brainresearchuk.org.uk/info/neurological-conditions
The Michael J. Fox Foundation For Parkinson's Research
Young Dementia Network
Rare Dementia Support
CJDSN (Creutzfeldt-Jakob Disease Support Network)
Head for Change
Cure CJD
Parkinson's UK
Request free information booklets with useful information on Parkinson's disease, it's symptoms and medication side-effects.
https://shop.parkinsons.org.uk/collections/symptoms-and-side-effects
The Lewy Body Society
The Huntington's Disease Association website provides a wide range of support, including information on the disease, local support available, and blogs.
Alzheimer Scotland
Homepage
Information library
https://www.alzscot.org/community-support/information-library/
Alex TLC (The Leukodystrophy Charity)
Useful links
Spinal Muscular Atrophy UK (SMA UK)
Support and information resources
Davis Phinney Foundation (Foundation for Parkinson's). US-based.
Receive the 'Every Victory Counts' manual for Parkinson's care
https://davisphinneyfoundation.org/every-victory-counts-manual/
Blog library
https://davisphinneyfoundation.org/blog/
Webinars
https://davisphinneyfoundation.org/webinars-and-meetups/
Podcasts
https://davisphinneyfoundation.org/podcasts/
Find and contact an Ambassador
Alzheimer's Association. US-based.
About Alzheimer's & dementia
https://www.alz.org/alzheimers-dementia
Help & support
https://www.alz.org/help-support
Research & progress
https://www.alz.org/alzheimers-dementia/research-and-progress
Our vision
Neural Network aims to make it easy for anyone to access high-quality information on neurodegenerative conditions.
To achieve this it provides a framework for accessing an ever-growing library of resources, information and support, all from one central online location.
The resources detailed within the Neural Network have been curated for their credibility, clarity and utility.
Disclaimer
Neural Network does not provide medical advice. The resources it facilitates access to are for reference, research and educational purposes only, and they are not intended as a substitute for professional medical advice, diagnosis or treatment. Always seek advice from a qualified healthcare professional about any medical concern, and do not disregard professional medical advice because of anything you may access on the Neural Network.
Unless otherwise explicitly stated, Neural Network takes no credit or responsibility for the research or information shown; please refer to the original authors for attribution.
Get in Touch
A critical aim of the Neural Network is to provide an easily-accessible source of neurodegeneration-relevant information that members of the public may not be aware of. I'm passionate about keeping the information here useful and relevant and so if you have feedback, discover a linked webpage has been removed before I do, or are running clinical trials and would like to collaborate then please feel free to either email at: contact@neuralnetwork.org or complete the adjacent form.
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