Condition:
Multiple sclerosis

Multiple sclerosis (MS) is a chronic autoimmune disease of the central nervous system, characterised by progressive inflammation and degeneration of brain nerve cells. MS affects around 3 million people worldwide, with females significantly more likely to develop it.

Access a multitude of multiple sclerosis-relevant resources, categorised into the following sections:

  1. Clinical trials

  2. Research publications

  3. Research participation

  4. Sources of information

  5. Newsletters

  6. Contact details, Socials and Helplines

  7. Media

  8. Care home resources

  9. Support for carers

  10. Shops with assistive products/aids

  11. Inequalities in neurodegeneration

Clinical trials

Be Part of Research (BPoR) - National Institute of Health and care Research (NIHR)
Multiple sclerosis clinical trials (and research studies) that are currently recruiting

https://bepartofresearch.nihr.ac.uk/results/search-results?query=Multiple%20sclerosis&location=

Octopus

Octopus: Optimal Clinical Trials Platform for Multiple Sclerosis

Has trial sites across the UK.

https://ms-octopus.mrcctu.ucl.ac.uk/

Register your interest in the UK MS Octopus clinical trial

https://ms-octopus.mrcctu.ucl.ac.uk/participants/register-your-interest/

ISRCTN - The UK's Clinical Study Registry

The ISRCTN registry is a primary clinical study registry recognised by the World Health Organisation (WHO) and the International Committee of Medical Journal Editors (ICMJE).

Condition category: Multiple sclerosis. Recruitment status: Recruiting

https://www.isrctn.com/search?q=multiple%20sclerosis&filters=conditionCategory:Nervous%20System%20Diseases,recruitmentStatus:recruiting&page=1&sort=&pageSize=10

Condition category: Multiple sclerosis. Recruitment status: All Recruitment Statuses

https://www.isrctn.com/search?q=multiple%20sclerosis&filters=conditionCategory:Nervous%20System%20Diseases&page=1&sort=&pageSize=10

EU Clinical Trials register
Click below to view the EU Clinical Trials registry for Multiple Sclerosis clinical trials

https://www.clinicaltrialsregister.eu/ctr-search/search?query=multiple+sclerosis

ClinicalTrials.gov (National Library of Medicine, US-based)
Click below to browse the EU Clinical Trials registry for currently-recruiting Multiple Sclerosis clinical trials:

https://clinicaltrials.gov/search?cond=Multiple%20Sclerosis&viewType=Card&aggFilters=status:rec

Real-time counter for clinical trials into Multiple Sclerosis (BPoR)

Research publications

Alzheimer's Association journals

A variety of open-access (no paid subscription required) scientific journals are produced by the Alzheimer's Association:

  • Alzheimer’s & Dementia®

  • Alzheimer's & Dementia: Translational Research & Clinical Interventions

  • Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring

  • Alzheimer’s & Dementia: Behavior & Socioeconomics of Aging

Together these journals have published a huge amount of dementia-themed, open-access research (over 16,000 publications).

The below link grants access to the over 700 multiple sclerosis publications found in these journals.

https://alz-journals.onlinelibrary.wiley.com/action/doSearch?AllField=Multiple+sclerosis&ConceptID=15941

PubMed (National Library of Medicine)

PubMed is a free resource supporting the search and retrieval of biomedical and life sciences literature with the aim of improving health–both globally and personally.

The PubMed database contains over 48,000 open-access (free to read and download) publications about multiple sclerosis:

https://pubmed.ncbi.nlm.nih.gov/?term=%22Multiple+sclerosis%22&filter=simsearch2.ffrft&sort=date

Research participation

Join Dementia Research - National Institute of Health and care Research (NIHR)

https://www.joindementiaresearch.nihr.ac.uk/

Be Part of Research - National Institute of Health and care Research (NIHR)
Multiple sclerosis research studies (and clinical trials) that are currently recruiting:

https://bepartofresearch.nihr.ac.uk/results/search-results?query=Multiple%20sclerosis&location=

Sources of information

Newsletters

MS-UK

Sign up to the MS-UK newsletter to receive their latest multiple sclerosis news, updates about services for people affected by multiple sclerosis.

https://ms-uk.org/ms-uk-newsletters/

MS Society

Sign up to the MS Society monthly e-newsletter "What's the Buzz?", which contains the latest information and updates on MS treatments, research and support services.

https://signup.mssociety.org.uk/page/31220/-/1

Contact details, Socials and Helplines

MS-UK
Contact via website:

https://ms-uk.org/contact/

Contact via email:

Info@ms-uk.org

Contact via telephone helpline:

0800 783 0518

Contact via WhatsApp

07824 708897

Engage via socials:
Facebook

https://www.facebook.com/MultipleSclerosisUK

Instagram

https://www.instagram.com/multiplesclerosis_uk/

YouTube

https://www.youtube.com/c/Ms-ukOrg

X

https://x.com/MSUK6

LinkedIn

https://www.linkedin.com/company/ms-uk/

MS Trust
Contact via website:

https://mstrust.org.uk/what-we-do/contact-us

Contact charity via email:

hello@mstrust.org.uk

Contact charity via telephone:

01462 536007

Contact helpline via email:

helpline@mstrust.org.uk

Contact helpline via telephone:

0800 032 38 39 (Freephone)

Engage via socials:
Facebook

https://www.facebook.com/mstrustuk

Instagram

https://www.instagram.com/ms_trust

YouTube

https://www.youtube.com/mstrust

X

https://x.com/MSTrust

LinkedIn

https://www.linkedin.com/company/ms-trust/

TikTok

https://www.tiktok.com/@mstrustuk

Brain & Spine Foundation
Contact via website:

https://www.brainandspine.org.uk/contact-us/

Contact the Brain & Spine Foundation charity via email:

info@brainandspine.org.uk

Contact a helpline nurse via email:

helpline@brainandspine.org.uk

Contact a helpline nurse via telephone:

0808 808 1000 (Mon-Fri, 9am – 4pm)

Engage via socials:
YouTube

www.youtube.com/@BrainSpineFoundation

LinkedIn

https://www.linkedin.com/company/brain-and-spine-foundation/posts/?feedView=all

X

https://x.com/brainspine

Facebook

https://www.facebook.com/brainandspine

Instagram

https://www.instagram.com/brainandspine

Spotify

open.spotify.com/show/2m8R4f4rpK0lfnWAHWZJdY

Media

Care home resources

Support for carers

Citizens Advice

https://www.citizensadvice.org.uk/

Citizens Advice: 0800 144 8848

Carers Direct

https://www.carersdirect.org/

Carers Direct helpline: 0300 123 1053

Receive an NHS Carers Assessment (NHS)

An NHS carers assessment may lead to a Care And Support Plan and/or financial support from your council. To receive financial support the council may need to conduct a financial assessment.

https://www.nhs.uk/social-care-and-support/support-and-benefits-for-carers/benefits-for-carers/

Carers UK

https://www.carersuk.org/help-and-advice/

Carers UK helpline: 0808 808 7777

Online forum: https://forum.carersuk.org/

Carers Credit - gov.uk

https://www.gov.uk/carers-credit

Or call the Carers Allowance unit: 0800 731 0297

Caring Together charity (Cambridgeshire, Peterborough and Norfolk)

https://www.caringtogether.org/

Carers Network

https://www.carers-network.org.uk/

info@carers-network.org.uk

Tel no: 020 8960 3033. Lines open Mon-Fri, 09.00-17.00 (except Bank holidays)

The Lewy Body Society
Tips for carers and details on the Admiral Nurse Dementia helpline

https://www.lewybody.org/information-and-support/support-for-carers/

Alzheimer Scotland
Information, support and a helpline telephone number for carers.

https://www.alzscot.org/community-support/carer-support/

Shops with assistive products/aids

TabTime
TabTime produces products to help keep track of when it's time to take medications.

https://tabtime.com/collections/products-for-parkinsons

Independence Ltd.
Independence Ltd. is a family-run business that has a catalogue of helpful living aids to assist in staying safe and independent.
Store homepage

https://www.independence.ltd.uk/

Neurodegeneration-directed products

https://www.independence.ltd.uk/helpful-ideas/useful-products-for-parkinsons/

Facebook page

https://www.facebook.com/people/Independence-Ltd/61566331302484/?locale=en_GB

MSA Trust
Find or list second hand equipment through the MSA Trust

https://www.msatrust.org.uk/support/support-services/second-hand-equipment/

Inequalities in neurodegeneration

Office of Health Economics
Article - Inequalities in dementia

https://www.ohe.org/publications/inequalities-in-dementia/

London School of Economics, Care Policy and Evaluation Centre
Read the May 2024 Dementia and Inequality report

https://www.lse.ac.uk/cpec/assets/documents/CPEC-briefing-1-Dementia-and-inequality.pdf

House of Commons Library
Research briefing May 2024: Inequalities in dementia services

https://researchbriefings.files.parliament.uk/documents/CDP-2024-0098/CDP-2024-0098.pdf

Our vision

Neural Network aims to make it easy for anyone to access high-quality information on neurodegenerative conditions.

To achieve this it provides a framework for accessing an ever-growing library of resources, information and support, all from one central online location.

The resources detailed within the Neural Network have been curated for their credibility, clarity and utility.

Disclaimer

Neural Network does not provide medical advice. The resources it facilitates access to are for reference, research and educational purposes only, and they are not intended as a substitute for professional medical advice, diagnosis or treatment. Always seek advice from a qualified healthcare professional about any medical concern, and do not disregard professional medical advice because of anything you may access on the Neural Network.

Unless otherwise explicitly stated, Neural Network takes no credit or responsibility for the research or information shown; please refer to the original authors for attribution.

Get in Touch

A critical aim of the Neural Network is to provide an easily-accessible source of information on ongoing Clinical Trials that members of the public may not be aware of. I'm passionate about keeping the information here useful and relevant and so if you have feedback, discover a linked webpage has been removed before I do, or are running clinical trials and would like to collaborate then please feel free to either email at: contact@neuralnetwork.org or complete the adjacent form.

Contact

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Linking Society and Science

E-mail: contact@neuralnetwork.org

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