Condition: Dementias and Alzheimer's disease
Access a multitude of dementia-relevant resources, categorised into the following sections:
Clinical trials
Research publications
Research participation
Sources of information
Newsletters
Contact details, Socials and Helplines
Media
Care home resources
Support for carers
Shops with assistive products/aids
Inequalities in neurodegeneration
Links go directly to the necessary information.
Just easy access to the information you need - the way it should be
Clinical trials
NHS Imperial College Healthcare - Imperial Memory Unit
Clinical trials overview page
https://www.imperial.nhs.uk/our-services/imperial-memory-unit/our-clinical-trials
Alzheimer's disease clinical trials
NHS North Bristol - ReMemBr
https://www.nbt.nhs.uk/our-services/a-z-services/dementia-remembr-group/remembr-group-get-involved
Alzheimer Scotland
https://www.alzscot.org/campaign-for-change/fair-dementia-care/
NHS Lothian – Neuroprogressive and Dementia Network
https://services.nhslothian.scot/neuroprogressiveanddementianetwork/current-studies/
Newcastle Clinical Trials Unit (Newcastle University) – Neurological trials
UK Dementia Trials Network (UKDTN)
The Lewy Body Society
Sign up to clinical trials that the Lewy Body Society are advertising
https://www.lewybody.org/clinical-trials-research-opportunities/
Lewy Body Dementia Association (USA-based)
Sign up to the LBDA lewy body dementia trial tracker (Note: LBDA is USA-based)
Be Part of Research - National Institute of Health and care Research (NIHR)
Dementia clinical trials (and research studies)
https://bepartofresearch.nihr.ac.uk/results/search-results?query=Dementia
Parkinson's disease clinical trials (and research studies)
https://bepartofresearch.nihr.ac.uk/results/search-results?query=parkinsons&location=
Search clinical trials (and research studies) by condition, a-z
ISRCTN - The UK's Clinical Study Registry
The ISRCTN registry is a primary clinical study registry recognised by the World Health Organisation (WHO) and the International Committee of Medical Journal Editors (ICMJE).
Condition category: Nervous System. Recruitment status: Recruiting
Condition category: Nervous System. Recruitment status: All Recruitment Statuses
https://www.isrctn.com/search?q=&filters=conditionCategory%3ANervous+System+Diseases
TrialMatch - Alzheimer's Association
Access national and international clinical trials by searching by condition and location
https://www.alz.org/alzheimers-dementia/research_progress/clinical-trials/about-clinical-trials
Alzheimer's Prevention Registry - EndAlzNow.org
Sign up to receive information on prevention study opportunities.
Dominantly Inherited Alzheimer Network (DIAN)
Fox Trial Finder - The Michael J. Fox Foundation for Parkinson's Research
Research publications
Frontiers in Dementia
The open-access journal "Frontiers in Dementia" strives to accelerate clinical and translational dementia research including research ranging from risk factors to care, biomarkers, and molecular mechanisms.
Alzheimer's Association journals
A variety of open-access (no paid subscription required) scientific journals are produced by the Alzheimer's Association:
Alzheimer’s & Dementia®
Alzheimer's & Dementia: Translational Research & Clinical Interventions
Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring
Alzheimer’s & Dementia: Behavior & Socioeconomics of Aging
Together these journals have published a huge amount of dementia-themed, open-access research (over 16,000 publications).
The below link grants access to the publications in all of these journals.
npj Dementia (Nature Portfolio journal: Dementia)
npj Dementia is an open access, international, peer-reviewed journal dedicated to publishing the highest quality research relevant to all aspects of dementia research.
Journal of Dementia and Alzheimer's Disease
Journal of Dementia and Alzheimer's Disease is an international, peer-reviewed, open access journal on all types of dementia, with particular interest on Alzheimer’s disease, published quarterly online.
Dementia: The International Journal of Social Research and Practice (Sage Publications)
This journal aims to provide high-quality evidence, commentaries, and book reviews for the field of dementia generally, and social research specifically.
The link Neural Network provides below shortlists only the publications that are open-access and so freely available to the public.
PubMed (National Library of Medicine)
PubMed is a free resource supporting the search and retrieval of biomedical and life sciences literature with the aim of improving health–both globally and personally.
The PubMed database contains over 140,000 open-access (free to read and download) publications about dementia:
https://pubmed.ncbi.nlm.nih.gov/?term=dementia&filter=simsearch2.ffrft&sort=date
For any other query, you can click the link above and use the search bar to scour the vast PubMed library for literature that's relevant to you.
Research participation
NHS Lothian – Neuroprogressive and Dementia Network
https://services.nhslothian.scot/neuroprogressiveanddementianetwork/current-studies/
NHS Foundation Trust - Sussex Partnership
Join Dementia Research - National Institute of Health and care Research (NIHR)
Be Part of Research - National Institute of Health and care Research (NIHR)
Dementia research studies (and clinical trials)
https://bepartofresearch.nihr.ac.uk/results/search-results?query=Dementia
Parkinson's disease research studies (and clinical trials)
https://bepartofresearch.nihr.ac.uk/results/search-results?query=parkinsons&location=
Search research studies (and clinical trials) by condition, a-z
Enroll-HD (Huntington's Disease Association)
MSA Trust (Multiple System Atrophy Trust)
https://www.msatrust.org.uk/cause-and-cure/get-involved-in-research/open-msa-studies/
The Lewy Body Society
Dementias Platform - NTAD study (New Therapeutics in Alzheimer's Disease)
NTAD is a collaboration between private companies AstraZeneca, Janssen and Lilly, and the universities of Cambridge, Cardiff and Oxford, and is looking for people with memory problems or a diagnosis of Alzheimer's disease.
LifeArc - NEURii
NEURii will explore the use of data and digital solutions to complement approved treatment options for dementia and solve issues related to the prediction, prevention, management, and treatment of dementia.
Sources of information
Brain & Spine Foundation
NHS
https://www.nhs.uk/conditions/creutzfeldt-jakob-disease-cjd/
https://www.nhs.uk/conditions/dementia/
https://www.nhs.uk/conditions/dementia-with-lewy-bodies/
https://www.nhs.uk/conditions/huntingtons-disease/
https://www.nhs.uk/conditions/motor-neurone-disease/
https://www.nhs.uk/conditions/multiple-sclerosis/
https://www.nhs.uk/conditions/multiple-system-atrophy/
https://www.nhs.uk/conditions/parkinsons-disease/
https://www.nhs.uk/conditions/progressive-supranuclear-palsy-psp/
The Brain Charity
Alzheimer's Research UK
ALS Association
Shift.ms
PSPA (Progressive Supranuclear Palsy Association)
https://www.pspassociation.org.uk/information-and-support/what-is-psp/
Brain Research UK
https://www.brainresearchuk.org.uk/info/neurological-conditions
The Michael J. Fox Foundation For Parkinson's Research
Young Dementia Network
Rare Dementia Support
CJDSN (Creutzfeldt-Jakob Disease Support Network)
Head for Change
Cure CJD
Parkinson's UK
Request free information booklets with useful information on Parkinson's disease, it's symptoms and medication side-effects.
https://shop.parkinsons.org.uk/collections/symptoms-and-side-effects
The Lewy Body Society
The Huntington's Disease Association website provides a wide range of support, including information on the disease, local support available, and blogs.
Alzheimer Scotland
Homepage
Information library
https://www.alzscot.org/community-support/information-library/
Alex TLC (The Leukodystrophy Charity)
Useful links
Spinal Muscular Atrophy UK (SMA UK)
Support and information resources
Davis Phinney Foundation (Foundation for Parkinson's). US-based.
Receive the 'Every Victory Counts' manual for Parkinson's care
https://davisphinneyfoundation.org/every-victory-counts-manual/
Blog library
https://davisphinneyfoundation.org/blog/
Webinars
https://davisphinneyfoundation.org/webinars-and-meetups/
Podcasts
https://davisphinneyfoundation.org/podcasts/
Find and contact an Ambassador
Alzheimer's Association. US-based.
About Alzheimer's & dementia
https://www.alz.org/alzheimers-dementia
Help & support
https://www.alz.org/help-support
Research & progress
https://www.alz.org/alzheimers-dementia/research-and-progress
Newsletters
Ageing Better
Sign up to receive the Ageing Better email newsletter including news, research, policy and events.
UKDRI News
The general e-newsletter 'Inside Eye on UKDRI'
https://ukdri.us16.list-manage.com/subscribe?u=89dd070bf85e6c044d4a0a1e1&id=e5bddd4107
The quarterly e-newsletter focused on translational news at the Institute
https://ukdri.us16.list-manage.com/subscribe?u=89dd070bf85e6c044d4a0a1e1&id=311ab484b9
Alzheimer's Research UK (ARUK)
Receive the ARUK research e-Newsletter
Sign up to ARUK emails
https://www.alzheimersresearchuk.org/campaigns/sign-up-to-our-newsletters/
Young Dementia Network
https://www.youngdementianetwork.org/news-and-events/our-newsletters/
Carers Trust
Dementia Carers
https://dementiacarers.org.uk/news/ (scroll to the bottom of the page to find the "Keep in Touch!" section.)
The Michael J. Fox Foundation For Parkinson's Research
The Michael J. Fox online newsletter
The Lewy Body Society
Sign up to be kept up-to-date with the latest news and updates from the Lewy Body Society.
Alzheimer Scotland
Sign up to Alzheimer Scotland e-news to receive regular email updates
The Brain Charity
Sign up to receive The Brain Charity's newsletter to get regular updates on the work they do, the latest news, fundraising challenges and real life stories.
https://www.thebraincharity.org.uk/press-media/our-newsletter/
Spinal Muscular Atrophy UK (SMA UK)
SMA News Today (Spinal Muscular Atrophy)
Alex TLC (The Leukodystrophy Charity)
Join the Alex TLC mailing list to receive monthly news round-ups, research summaries and charity updates.
Alzheimer's Drug Discovery Foundation
Sign up to the ADDF newsletter to stay up to date with the latest drug discovery and prevention research from the Alzheimer’s Drug Discovery Foundation.
Davis Phinney Foundation (Foundation for Parkinson's). (US-based)
Join the David Phinney Foundation newsletter to receive the latest updates on webinars, community meet-ups, educational events, and valuable resources for people living with Parkinson’s delivered directly to your inbox.
Alzheimer's Association. (US-based)
Receive weekly updates from Alzheimer's Association on advances in research, resources and inspirational stories for people living with the condition and their caregivers.
Brain Research UK
Sign up to the BRUK e-newsletter to keep up-to-date with their work and receive useful insights.
Contact details, Socials and Helplines
Dementia UK
Contact via website:
https://www.dementiauk.org/contact-us/
Contact via email:
Contact via telephone:
020 8036 5400
Contact Dementia UK Admiral Nurses via telephone:
0800 888 6678. Mon-Fri, 09.00-21.00. Sat-Sun, 09.00-17.00. Open bank holidays (09.00-17.00) except 25th Dec.
Contact via post:
Dementia UK, 7th Floor
One Aldgate
London EC3N 1RE
Engage via socials:
YouTube
https://www.youtube.com/user/DementiaUK1
https://www.facebook.com/DementiaUK
X
https://www.instagram.com/dementia_uk/
https://www.linkedin.com/company/dementia-uk/
TikTok
Brain Research UK
Contact via email:
Contact via telephone
020 7404 9982
Contact via post
Brain Research UK
Fifth Floor
Holborn Gate
330 High Holborn
London WC1V 7QH
Engage via socials:
Youtube
https://www.youtube.com/channel/UCFlrp6Gm7SGNBzCWq20CRWQ
https://www.facebook.com/BRUKresearch/
X
https://www.instagram.com/brainresearchuk
Dementias Platform UK
Contact via website:
https://www.dementiasplatform.uk/about-us/contact-us
Contact via email:
Engage via socials:
Bluesky
https://bsky.app/profile/dementiasplatform.bsky.social
X
Linked In
Alzheimer’s Research UK
Contact via website:
https://www.alzheimersresearchuk.org/about-us/contact-us/
Engage via socials:
Youtube
https://www.youtube.com/@AlzheimersResearchUK
https://www.facebook.com/AlzheimersResearchUK
X
https://www.instagram.com/alzheimersresearchuk
Dementia Research Centre
Visitor address:
First floor, 8-11 Queen Square
London, WC1N 3AR
Postal address:
Box 16, National Hospital for Neurology and Neurosurgery
Queen Square
London, WC1N 3BG
Cognitive Disorders Clinic
Contact via email:
uclh.cognitivedisordersclinic@nhs.net
Contact via telephone:
+44 (0)20 3448 3171
Contact via post:
National Hospital for Neurology and Neurosurgery
Basil Samuel Outpatient Department
Queen Square
London, WC1N 3BG
Dementia Carers Count
Contact via website:
https://dementiacarers.org.uk/what-we-do/dementia-carer-support-services/carer-support-line/
Contact via telephone:
0800 652 1102
Engage via socials:
YouTube
https://www.youtube.com/c/DementiaCarersCount
https://www.facebook.com/DemCarersCount
X
https://www.instagram.com/dementiacarerscount
Rare Dementia Support
Contact via website:
https://www.raredementiasupport.org/contact-us/
Contact via email:
contact@raredementiasupport.org
Contact via telephone:
Leave a voicemail at 020 3318 0243 and RDS will get back to you.
Engage via socials:
YouTube
https://www.youtube.com/channel/UCuVA3iffOcwz04qBkjZgKqg
https://en-gb.facebook.com/raredementiasupport/
X
UK Dementia Research Institute (UKDRI)
Contact via website:
https://www.ukdri.ac.uk/our-story/about-us/contact
Contact via email:
Contact via telephone:
+442046 027013.
Engage via socials:
YouTube
https://www.youtube.com/@ukdementiaresearchinstitute
Bluesky
https://bsky.app/profile/ukdri.ac.uk
X
Parkinson's UK
Email: hello@parkinsons.org.uk
Tel: 0808 800 0303. Mon-Fri 09.00-18.00, Sat 10.00-13.00.
Alzheimer Scotland
Website: https://www.alzscot.org/about-us/care/helpline/
Email: helpline@alzscot.org
Tel: 0808 808 3000. 24/7 Freephone helpline.
The Brain Charity
Contact via website:
https://www.thebraincharity.org.uk/about-the-brain-charity/contact-us/
Engage via socials:
YouTube
https://www.youtube.com/channel/UCwKcEs-Dch--JIPh870_TsA
https://www.linkedin.com/company/the-brain-charity/
X
https://www.facebook.com/thebraincharity
https://www.instagram.com/thebraincharity/
TikTok
Alex TLC (The Leukodystrophy Charity)
Contact via website:
https://alextlc.org/contact-us/
Contact via email:
Contact via telephone:
020 7701 4388
Contact via post:
Alex, The Leukodystrophy Charity, 45 Peckham High Street, London SE15 5EB
Engage via socials:
YouTube
https://www.youtube.com/@AlexTLC
https://www.linkedin.com/company/alex-tlc/
https://www.facebook.com/AlexTLCsupport/
Spinal Muscular Atrophy UK (SMA UK)
Contact via website:
Contact via email:
Contact via telephone:
01789 267520
Engage via socials:
YouTube
https://www.youtube.com/c/SpinalMuscularAtrophyUK
https://www.linkedin.com/company/sma-uk/
X
https://www.facebook.com/SpinalMuscularAtrophyUK/
Davis Phinney Foundation (Foundation for Parkinson's). US-based.
Contact via website:
https://davisphinneyfoundation.org/contact-us/
Contact via email:
Engage via socials:
YouTube
https://www.youtube.com/user/davisphinneyfdn/feed
https://www.linkedin.com/company/the-davis-phinney-foundation/
X
https://www.facebook.com/DPFnd/
Alzheimer's Association. US-based.
Contact via website:
https://www.alz.org/contact-us
Download the "My ALZ Journey" app
https://www.alz.org/help-support/resources/my-alz-journey#download
Engage via socials:
YouTube
https://www.youtube.com/user/actionalz
https://www.linkedin.com/company/alzheimer%27s-association/
Bluesky
https://bsky.app/profile/alzassociation.bsky.social
X
https://www.facebook.com/actionalz
Media
Young Dementia Network webinars
https://www.youngdementianetwork.org/news-and-events/our-webinars/
Dementia UK
Advice videos
https://www.dementiauk.org/information-and-support/resources/advice-videos/
Personal stories
UCLA Health (University of California, Los Angeles)
Alzheimer's Caregiver Education Series - A free webinar series of 25 videos that provide help and guidance for anyone affected by dementia.
https://www.uclahealth.org/medical-services/geriatrics/dementia/caregiver-education/aces-webinars
Alzheimer's and dementia caregiver training videos
Alzheimer's & dementia care: Common challenges videos
Monthly "Better caregiving for all" webinar series
Dementias Platform
Alzheimer's Association
"ALZ Talks" webinars
https://www.alz.org/help-support/resources/alz-talks-virtual-events
Free learning webinars
https://www.alz.org/help-support/resources/live-learning-webinars
Free online educational programmes and dementia care resources
https://www.alz.org/help-support/resources/care-education-resources
Spinal Muscular Atrophy UK (SMA UK)
Access WhatsApp groups, podcasts, videos and community experiences
Davis Phinney Foundation (Foundation for Parkinson's). US-based.
Blog library
https://davisphinneyfoundation.org/blog/
Webinars
https://davisphinneyfoundation.org/webinars-and-meetups/
Podcasts
BBC
BBC radio 4: Dementia: Unexpected Stories of the Mind
https://www.bbc.co.uk/programmes/m001kww0/episodes/player
BBC memory radio channel
https://www.bbc.co.uk/sounds/brand/p07mvnd1
BBC: Dementia And Me video series
Care home resources
Lottie
Care Quality Commission (CQC) – Find a care home
Support for carers
Receive an NHS Carers Assessment (NHS)
An NHS carers assessment may lead to a Care And Support Plan and/or financial support from your council. To receive financial support the council may need to conduct a financial assessment.
https://www.nhs.uk/social-care-and-support/support-and-benefits-for-carers/benefits-for-carers/
Age UK
https://www.ageuk.org.uk/information-advice/money-legal/benefits-entitlements/
Contact Age UK: 0800 678 1602
Carers UK
https://www.carersuk.org/help-and-advice/
Carers UK helpline: 0808 808 7777
Online forum: https://forum.carersuk.org/
Carers Credit - gov.uk
https://www.gov.uk/carers-credit
Or call the Carers Allowance unit: 0800 731 0297
Caring Together charity (Cambridgeshire, Peterborough and Norfolk)
Carers Trust
Carers Network
https://www.carers-network.org.uk/
Tel no: 020 8960 3033. Lines open Mon-Fri, 09.00-17.00 (except Bank holidays)
Healthwatch
https://www.healthwatch.co.uk/advice-and-information/search?combine=&field_themes_target_id%5B%5D=18
Tel no: 03000 683 000. Lines open 08.30-17.30, Mon-Fri.
The Lewy Body Society
Tips for carers and details on the Admiral Nurse Dementia helpline
https://www.lewybody.org/information-and-support/support-for-carers/
Alzheimer Scotland
Information, support and a helpline telephone number for carers.
Shops with assistive products/aids
AlzProducts.co.uk
DementiaCareProducts
TabTime
TabTime produces products to help keep track of when it's time to take medications.
Independence Ltd.
Independence Ltd. is a family-run business that has a catalogue of helpful living aids to assist in staying safe and independent.
Store homepage
https://www.independence.ltd.uk/
Neurodegeneration-directed products
https://www.independence.ltd.uk/helpful-ideas/useful-products-for-parkinsons/
Facebook page
https://www.facebook.com/people/Independence-Ltd/61566331302484/?locale=en_GB
Inequalities in neurodegeneration
Office of Health Economics
Article - Inequalities in dementia
Alzheimer’s Association
LGBTQ+ Community Resources for Dementia
https://www.alz.org/help-support/resources/alzheimers-and-dementia-resources-for-lgbtq-commun
Veterans and dementia
https://www.alz.org/help-support/resources/veterans-dementia
Native Americans and Alzheimer's
https://www.alz.org/help-support/resources/native-americans
Hispanic Americans and Alzheimer's
https://www.alz.org/help-support/resources/hispanics-and-alzheimers
Black Americans and Alzheimer's
https://www.alz.org/help-support/resources/black-americans-and-alzheimers
Asian Americans and Pacific Islanders and Alzheimer's
https://www.alz.org/help-support/resources/asian-americans-and-alzheimers
Strengthening Diversity, Equity and Inclusion
https://www.alz.org/about/annual-report/strengthening-diversity-equity-and-inclusion
Article: How Do Diversity and Stress Play A Role in Alzheimer’s Risk?
UK Health Security Agency (gov.uk)
Read the blog: "Health Matters: Health inequalities and dementia"
Alzheimer’s Research UK
Dementia and diversity statistics
https://dementiastatistics.org/perceptions-and-inequalities/inequalities/
Equity, Diversity and Inclusion
https://www.alzheimersresearchuk.org/about-us/how-we-do-it/equity-diversity-and-inclusion/
Article: Why inclusivity matters in dementia research
The Impact of dementia on women - Article
The Impact of dementia on women - Download the report
YouTube video - Tackling Inequalities in a Diverse Dementia Population, ARUK Clinical Conference 2022
Institute of Health Equity
Download the Inequalities report
Care Quality Commission
Access the CQC report on dementia inequalities
London School of Economics, Care Policy and Evaluation Centre
Read the May 2024 Dementia and Inequality report
https://www.lse.ac.uk/cpec/assets/documents/CPEC-briefing-1-Dementia-and-inequality.pdf
House of Commons Library
Research briefing May 2024: Inequalities in dementia services
https://researchbriefings.files.parliament.uk/documents/CDP-2024-0098/CDP-2024-0098.pdf
Race Equality Foundation
Dementia and BAME communities
https://raceequalityfoundation.org.uk/projects/dementia-and-bame-communities/
Dementia and Black and minority ethnic communities: resources
BAME people living with Dementia
https://raceequalityfoundation.org.uk/projects/bame-people-living-with-dementia/
Blog: Better support for BAME people living with Dementia
https://raceequalityfoundation.org.uk/blog/better-support-for-bame-people-living-with-dementia/
The EMPOWER Dementia Network: Empowering a Meaningful Life for All
How the NHS Can Break the ‘30-Year Cycle’ and Use Ethnicity Data to Tackle Health Inequalities Today, Dec 2025
Race Equality Foundation: "Dementia" search
Our vision
Neural Network aims to make it easy for anyone to access high-quality information on neurodegenerative conditions.
To achieve this it provides a framework for accessing an ever-growing library of resources, information and support, all from one central online location.
The resources detailed within the Neural Network have been curated for their credibility, clarity and utility.
Disclaimer
Neural Network does not provide medical advice. The resources it facilitates access to are for reference, research and educational purposes only, and they are not intended as a substitute for professional medical advice, diagnosis or treatment. Always seek advice from a qualified healthcare professional about any medical concern, and do not disregard professional medical advice because of anything you may access on the Neural Network.
Unless otherwise explicitly stated, Neural Network takes no credit or responsibility for the research or information shown; please refer to the original authors for attribution.
Get in Touch
A critical aim of the Neural Network is to provide an easily-accessible source of information on ongoing Clinical Trials that members of the public may not be aware of. I'm passionate about keeping the information here useful and relevant and so if you have feedback, discover a linked webpage has been removed before I do, or are running clinical trials and would like to collaborate then please feel free to either email at: contact@neuralnetwork.org or complete the adjacent form.